The very best and worst of days

October 22, 2008

When I’m feeling blue, I will often lie in bed and stroke my husband’s jawline. Sometimes he’s awake, sometimes not. I usually do this on the day he’s shaved. In those few hours it takes for regrowth to resurface, I will run my fingers with the ‘grain’ of his skin, and get comfort from the smoothness. Then, because I am a masochist, I will turn in the other direction, run back up towards his ear and scratch my knuckles on the stubble because dammit if it doesn’t hurt. But it is the downward strokes, the unchallenging, soft yielding of his skin when I feel that perhaps everything will be okay. There is no need to be sad.

******

But there is need to be sad this week. And the jaw-stroking isn’t helping.

******

Monday started out to be a great day. Successful book launch on Saturday and then I walked into a bookstore and saw mine on the New Release shelf. Completely unexpected. I took a photo with my awful mobile phone, but the picture is only 20kbs so I daresay it’s not going to be worth the trouble posting here. Let’s just imagine the joy, eh?

A few hours later, my mother rings. My father, who has been unwell these past few months and is steadily getting worse, has finally gotten his 99% sure diagnosis: Motor Neuron Disease (also known in the US as Lou Gehrig’s disease). I haven’t discussed this here on the blog before now because a lot of possibilities had been floated around to explain his declining condition and none were good – but this was really the ‘worst’ of what they were expecting.

My book launch now seems insignificant. The bunches of flowers scattered across the house as presents on the day seem colourfully inappropriate. All of what I held important mere days ago has been shunted sharply to the right.

So. There it is.

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{ 19 comments… read them below or add one }

TassjaLi October 22, 2008 at 8:43 am

Hugs all round!

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Veronica October 22, 2008 at 9:39 am

Crap.

Hugs.

Veronica’s last blog post..Getting there

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Shelly October 22, 2008 at 9:57 am

I’m currently veering alternately between feeling sad and feeling really, really angry that this is happening to him. It’s kind of like the progressive stages they mention in blackadder- I’m due to become really forgetful and then jump into a corner next.

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Bettina October 22, 2008 at 10:32 am

hugs darl.

They are both really big things and while one casts shadow on the other right now, I’m sure that the good from one will help you balance the sadness of the other in times ahead.

Bettina’s last blog post..CCCCCCCCCOLD!

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jen October 22, 2008 at 10:59 am

I’m really sorry to hear this and I’m thinking of you. It’s awful seeing our parents sick.

I’m so glad the book launch went well. At least something is good!

jen’s last blog post..Sony Ericsson C902 phone giveaway

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Riayn October 22, 2008 at 3:56 pm

I am so sorry to hear that it is your father that has MND. It must be a terrible blow to you and your entire family. I really, really hope that your dad is one of the fortune ones like Stephen Hawkings who can live a long and productive life with MND.

Riayn’s last blog post..They aren?t our elections

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nellbe October 22, 2008 at 5:42 pm

:( I am so sorry.

nellbe’s last blog post..Menu Plan Monday – 20th October

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Robyn October 22, 2008 at 5:57 pm

I am so sorry to hear that this was the diagnonis. I don’t know what to say to offer any consolation and since I’m a virtual stranger there probably is nothing I can say… but I could not read this, drop and run.

I wish you and your family strength, hope and courage.

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Gill October 22, 2008 at 7:13 pm

I am so, so sorry; my heart is breaking for you right now. {{hugs}}

Gill’s last blog post..Personal Needs Analysis tag

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Tracey October 22, 2008 at 8:22 pm

Oh sheesh. I don’t know what to say, just wanted to let you know I’m thinking of all of you.

Tracey’s last blog post..Ticked THAT box.

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OvaGirl October 22, 2008 at 8:47 pm

I’m so sorry about your dad. My thoughts are with you and your family.

OvaGirl’s last blog post..A new stage worth toasting… nightly.

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Jayne October 22, 2008 at 9:57 pm

(((hugs)))

Jayne’s last blog post..Trivial History October 23

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Janet October 23, 2008 at 1:45 am

That is indeed terrible news, but don’t let it rob you of your success. We’re sending hugs and good thoughts to all your family.

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D.Paul October 23, 2008 at 2:06 am

I’m so sorry about the news, Karen. Only the very best of hugs and positive vibes from my corner of the world today.

If there’s anything you need from thousands of miles away, please, don’t hesitate.

D.Paul’s last blog post..12 YEAR OLD REVOLUTIONIZES SOLAR CELL, STILL CAN’T GET DATE

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Miscellaneous-Mum October 23, 2008 at 7:11 am

Thanks all so much. I appreciate it xxxxxxx

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Kelley October 23, 2008 at 11:40 am

:( At least you know, as scary as it is, at least you have a name for it.

Hugs

Kelley’s last blog post..Noooooooo!!!!!!! *sob*

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Stella October 24, 2008 at 8:28 pm

My heart goes out to you and your family. Bad stuff shouldn’t happen to good people.

Stella’s last blog post..Ubud

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Miscellaneous-Mum October 24, 2008 at 8:55 pm

xxx all xxx

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kim October 26, 2008 at 3:51 pm

Hi Karen, just catching up on your blog. I’m so sorry to hear about your dad. It was lovely to meet him last weekend and I wish him and your family all the best xx

kim’s last blog post..Surprise! Book launch + GIVEAWAY!

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